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1 reviews

Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

When my grandson was born we were very scared and had no knowledge of the syndrome and we were not given any info about it. After surfing the web we found this 1p36 group and finally someone had some answers for us. We went from being scared and feeling all alone in this journey to finding a whole "family" to travel this road with. We have been truly blessed with the people we have met and I couldn't say enough about this group. If there was a button to click 10+ stars I would. Thank you from the bottom of my heart for all that you do! Donna ~ Nana to Jason ~

Role:  General Member of the Public