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barbara1950

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1 reviews

Review for Share Self-Help for Women with Breast or Ovarian Cancers, Inc., New York, NY, USA

Rating: 5 stars  

Callers are beyond overjoyed when they are finally able to connect with me, a match volunteer who has their same exceedingly rare permanent pain disability from breast cancer surgery. I had to go out of state to Sloan's pain clinic to finally obtain a diagnosis!

I am also able to assist those afflicted with my secondary more common treatment induced handicap. In addition, I try to provide hope to women who have been diagnosed with the ultra rare & aggressive type of breast cancer that I had 15 years ago.

I direct them to neurologists and anesthesiologists for the pain syndrome (post lymph node dissection nerve pain) and also to specialists who treat patients with a compromised lymphatic system like I have from surgery/ radiation. I refer to my list of major U.S. cancer centers (teaching hospitals.)

I help with medical insurance battles as well. I was treated for a fibrosarcoma in the area of my anatomy affected by my pre existing impairments from breast cancer surgery. All sarcomas represent only 1% of all cancers -utterly uncommon- I fought my HMO (successfully!) for 51/2 months for an arm salvaging operation at Sloan- Kettering, an out of state/ out of network facility.

If I had to make changes to this organization, I would...

no changes needed - a superlative support group! If my name is googled, -don't want this submission to present itself. However, feel free to pass my entry on to Great Non profit organization Thanks!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer