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Avril O.

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1 reviews

Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 4 stars  

When I found global hydranencephaly foundation, my son was already a teenager, but the relief of finding other people in the same situation as us was great, the support you find, especially when he is ill, is great, and you can normally speak to someone who has been in the situation you are going through at the time, you can be totally open and frank, and know someone will reply without judging you. I am so thankful to everyone at GHF and really love hearing how their kids are keeping, and how they are coping, though it us very hard when a child gains their wings, especially when you have been through it yourself. The good thing about it being world wide is no matter what time day or night there is always someone their to help, comfort, advise when you are feeling overwhelmed, or just need to chat and boast about something your child has done, and everyone rejoices with you!! I dont know how I managed with my sons the years before I discovered GHF

Role:  Volunteer