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SmileLifeisshort

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1 reviews

Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

Dermatomyositis with ILD is rare and there is No Cure! Most die within 5-7 years after being diagnosed. I am beating the odds am going on my 12 year. This terrible disease effects my lungs, joints, muscles and everyday living.
This past September I was able to go the Myositis Assocation Conference in Reno, NV. My husband went with me and what an experience. the class sessions were very informative, meeting others whom have Myositis, doctors from all over the world. There were caregiver classes which helped him understand what I'm going through and I learned what he is going through. We left Reno, feeling you don't give up, you fight to keep on living.

Role:  Volunteer