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Chris164

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1 reviews

Review for International Rett Syndrome Association, Cincinnati, OH, USA

Rating: 5 stars  

The International Rett Syndrome Organization is the leading Rett Syndrome organization in the world.

IRSF is vigorously searching for a cure/reversal of Rett Syndrome. While doing so, they are the only organization that helps with TODAY's symptoms. They have been with us since our daughter's diagnosis at 17 months. Sorel is now almost nine years old and has benefitted greatly with all the early intervention of professionals from this wonderful organization. I don't know where we would be without them.

We are truly blessed to be surrounded by all these passionate professionals that I can call family.

I recommend reaching out to this organization if one feels that there daughter/son has Rett or is showing signs of Rett Syndrome.

Sincerely,
Chris (Sorel's Dad)

When was your last experience with this nonprofit?

2014

Role:  Volunteer