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Strawser111

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2 reviews

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

This an absolute wonderful organization. There is so much love, understanding, and information. Every single person will do everything they can to help each other. It is a tight community with friendships that will last a life time.

Role:  Client Served
 

Review for Barth Syndrome Foundation Inc, Larchmont, NY, USA

Rating: 5 stars  

This organization has changed our lives. When my 15 year old son was diagnosed with Barth syndrome, we were overwhelmed and lost. Through finding the Barth Syndrome Foundation, we were able to find specialists and information as to how to treat this extremely rare illness. Within just one week my son was starting to feel better. It has helped our whole family understand the illness and to know that we are not alone. The physical and mental support is just priceless.

Role:  Client Served