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corky825

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4 reviews

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

One of our brightest days was Feb 11, 2011 when our granddaughter Kathryn was born. One of our darkest days was a few months later when we found out she had been diagnosed with AHC (Alternating Hemiplegia of Childhood), a rare neurological disease affecting one in a million births. However when our son and his wife discovered the AHCF (Alternating Hemiplegia of Childhood Foundation Inc) the sun began to rise again. Here at this organization we all found an AHCF family of those fighting for their children, researchers fighting for a cure, information on the disease, ways to help raise funds, links to other organizations around the world, connections for encouragement, and most important of all, hope. We have joined the ranks of volunteers to help this organization continue their work as warriors in the fight to END AHC.

Role:  Volunteer
 

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

My husband and I have a granddaughter with AHC and have been learning as much as possible about it since she was diagnosed in 2011. The best information we have found is through the Alternating Hemiplegia of Childhood Foundation and their many volunteers and families fighting for their children. Their website is a wealth of information on AHC, the research being done to find a cure, the fund-raising efforts across the country, our connections to other organizations around the world, and most importantly, provides a meeting place for the families fighting for a normal life for their child afflicted with AHC. Hearing their stories can put your in awe of the strength, tenacity and love they display each and every day. Keep it up AHCF and your warriors!

Role:  Volunteer
 

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

I have only known about this great organization for a few years. But be assured that the Alternating Hemiplegia of Childhood Foundation (AHCF) does exactly what it claims to do…..help children with AHC and their families cope with the diagnosis, finding help amongst the AHCF community, raising awareness, and raising funds that almost entirely go toward research in finding a cure. I can’t say enough positive things about the people who serve the cause and work so hard to make life better for those afflicted with AHC. They give a priceless gift to those children and their families….the gift of hope.

Role:  General Member of the Public
 

Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

Our granddaughter, Kathryn is now 3 1/2 years old and was diagnosed with AHC within the first year. It goes without saying that we love her completely, but what we didn't expect to feel was such admiration as we watch her cope with seizures and trouble getting her body to do what she wants. She battles through and keeps on going, expecting to do what her older brother does, and not asking for any special treatment. Her "can do" attitude comes directly from her parents who watch over her, love her, but allow her to explore the world around her and interact with it, not just watch it. All of us have benefited from the AHCF family and their untiring efforts to find a cure for AHC AND provide a network of information and caring people to support the kids and their families.

Role:  General Member of the Public