My Nonprofit Reviews

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Review for PANDAS, Menlo Park, CA, USA

Rating: 5 stars  

Like so many other parents, I was at a loss as to what was going on with my son. I am the behavior specialist for my school district and I am well aware of behavior shaping and management. I was told we needed to stop enabling our son and put more strict systems in place in our home to get him back to school. I knew that was not the case, that something had happened, but I didn't know what it was and neither did anyone else. The psychiatrist suggested OCD and I didn't see it. So I began to research to understand what I was missing. That is when I found PANS/PANDAS and the PANDAS network. The diagnostics page gave me the information I needed to take back to my pediatrician, not my psychiatrist, to request the tests to identify if in fact this was what my son had. When lab work came back positive we were overjoyed to have an answer and a pathway. We are still healing, and it is a long road, but we have answers and we have others who understand the life that we now live. We have faith for full recovery. And it is thanks to the PANDAD network that we got the answers that we needed.

Role:  General Member of the Public