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descott5

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1 reviews

Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

Six years ago I was diagnosed with Myositis, a rare chronic disease. My doctors didn't have much information for me so I went to the internet. I found The Myositis Association (TMA). Their website contained years of information, research news, clinical trials and resources to assist me in my quest for information about my disease.
For the last six years, TMA has been the top source for my information about my disease. They have provided the latest updates and information on research, medication, and the latest clinical trial opportunities. TMA provides its members not only with information, but support by bring together its members at their annual patient conference. This conference brings patients, physicians, caretakers, and vendors together to share advancements, information, and ideas.
A lot of people owe the quality of their lives to TMA.

If I had to make changes to this organization, I would...

See that more people with the myositis diseases could attend the annual conference to enable them to learn to deal with their disease.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Board Member