My Nonprofit Reviews

We were at our wits end when my husband was first diagnosed until we found this wonderful foundation called "CCAN" now known as "NCAN". They have helped my family so much in the last four years from phone calls, to packets, to conferences, you name it. They helped us get on the right track and stay there. Maryann and Bob also run an annual "zebra walk" and our family travels from Florida, Connecticut and NY to be a part of this walk each year. The zebra community is so lucky to have Maryann, Bob and NCAN in their corners. Thank you for always being there for us.

We are almost three years into our journey with carcinoid cancer and couldn't have done it with CCAN now known as NCAN. Thanks to Maryann and her family, many families have been given the knowledge and resources to deal with their cancer. They are truly an amazing family and have helped so many. They make us feel like we are not alone. If we have a question, we just call and they are always there for us. From conferences, to cruises, to walks, CCAN is always there....We are so lucky to have them in our lives.

A year and a half ago, my husband (the zebra) and I (the caretaker) were at our wits ends. Four different doctors told us there was nothing we could do and just take the wait and see approach. I kept researching only to be told "we don't know enough about this cancer". One day, I decided to do something that I just wasn't sure about but I figured what the heck. I went onto facebook and typed in "carcinoid cancer". I found this group called the Carcinoid Cancer Awareness Network and told our story. Within minutes, I received a response from a woman, named Maryann, who would change our lives for the better. She gave me her phone number and asked me to call her. I immediately did and finally I felt someone could understand and possibly help us. Maryann gave me an email address to a doctor in New Orleans and told me exactly what to do and what would happen. It went down exactly as she described. Within a short period of time, we received all this helpful information from Maryann and within weeks we were in New Orleans meeting an unbelievable team of doctors. My husband and I now were given a new approach and a new way of looking at this. This is truly an amazing foundation that has helped so many patients and their families through their rough and uncertain times and has brought us all together. Maryann, as well as her family and the Carcinoid Cancer Awareness Network all let us know that we are not alone in this battle whether it be with a phone call, email, conferences, walks or galas. The Zebras and their caretakers are so lucky to have this wonderful foundation in our lives.

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