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Review for Chase The Cure, Inc, Cumberland, RI, USA

Rating: 5 stars  

A primary goal of Chase The Cure, Inc. is to fund promising new research in the hope it will benefit the current generation of Niemann Pick patients. Through this organization, Shannon openly shares the journey of her son, Chase, while providing a valuable resource for members of the Niemann Pick community. Chase The Cure connects families to researchers, physicians and others touched by the disease, helping them share ideas, experiences and the latest advances. The medical information available through the organization includes scientific literature as well as easy to understand descriptions of Niemann Pick Type C and its treatment. Chase The Cure helps raise awareness of this rare disease and offers hope to those who are fighting it.

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