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Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

As young parents to a child diagnosed with 1p36 deletion, I can honestly say we have never been more afraid about anything. Especially when your child's pediatrician doesn't have any knowledge or answers to offer you. After becoming a part of this wonderful group we no longer live in fear for our son. I've never seen so many loving and supportive people before in my life! They're all there to help everyone through any situation and we are forever grateful for every one of them!

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How do you feel you were treated by this organization?

Very Well

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Role:  Client Served