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Review for 1p36 Deletion Support & Awareness, Bend, OR, USA

Rating: 5 stars  

My daughter was diagnosed 7 years ago and I've been in the dark the entire time. We stumbled upon this group after becoming pregnant again and doing some more research on her diagnosis, I feel like I found a whole new world of people who actually understand us! This group has made me feel as though our situation was/is no longer a curse or unfortunate thing. I'm actually proud to be a 1p36 parent now and this organization is solely responsible for that. I am so very thankful I found what I consider to be my extended family!!

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Role:  General Member of the Public