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Review for New Jersey Chronic Fatigue Syndrome Association Inc. (NJCFSA), Florham Park, NJ, USA

Rating: 5 stars  

The NJCFSA helps inform the public and the professional world about a devastating disease that is often trivialized. "Chronic Fatigue Syndrome" sounds benign ("yeah, I get tired, too") yet the reality is that a majority of sufferers are housebound and the sickest are unable to move. The majority of medical professionals know little or nothing of this illness and much of what they think they know is actually inaccurate. By providing solidly researched yet accessible information to professionals, they break down walls of stigma. By providing that information to the public, they empower very sick patients with practical knowledge. The benefit of the NJCFSA goes far beyond the residents of New Jersey, positively impacting people across the globe.

If I had to make changes to this organization, I would...

get them much more funding. This is a great organization. I wish I were in a position to volunteer (too sick) or donate (too many medical bills) -- if I could, I would.

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Role:  General Member of the Public