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Amy_121

258 profile views
1 reviews

Review for EDS TODAY ~ Ehlers-Danlos Advocates , Mays Landing, NJ, USA

Rating: 5 stars  

My daughter was diagnosed with Vascular Ehlers-Danlos Syndrome at age 6. I had so many questions and was so scared and EDS today gave me the support I needed as a parent. This is where I turn with questions and concerns about my daughter's health.

If I had to make changes to this organization, I would...

No changes! I would just want more people to be aware of this great organization.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served
info (Nonprofit Staff) wrote:

Amy, Thank you so very much for taking the time to post this kind message. We deeply appreciate it. We're thankful that we were able to be here for you and your daughter. You're in our ♥ Thanks again!!!