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Review for EDS TODAY ~ Ehlers-Danlos Advocates , Mays Landing, NJ, USA

Rating: 5 stars  

This non-profit group for EDS is extremely passionate and devoted group to bring awareness towards identifiy the early signs of EDS and treating them quickly so other families do not have to experience what our family and many others have gone through needlessly. My cousin David Bowen passed away from EDS due in large part from the Doctors that treated him did not know the signs of EDS. If they were better educated and more informed they could have diagnosed David with EDS and treated him much differently before he had to suffer so much.

If I had to make changes to this organization, I would...

Keep doing what your doing!!

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Did the organization use your time wisely?

Very Well

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Role:  Volunteer