My Nonprofit Reviews
Review for Global Genes®, Aliso Viejo, CA, USA
For so many in this world who are struggling for answers with a rare disease, the Global Genes Network and RARE Project are the place to connect. This non-profit was founded from first-hand experience of knowing what it's like to desperately want to help someone you love, but having no where to turn for resources. The lack of a centralized information exchange for patients, caregivers, and the medical community needed to be changed, and the founder has done just that with her army of volunteers, advocates, and experts in the medical communities. The success of the Global Genes Network and RARE Project, in such a short time, in making connections that lead to diagnoses, new treatments, and changed lives is immeasurable! You just need one person to care as much as you do when you're struggling with a rare disease, and this non-profit multiplies that one person you need into millions more who care. So grateful!
If I had to make changes to this organization, I would...
Attempt to find a major corporate partner to help increase awareness of the RARE Project and The Global Genes Network.
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