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Henn_Cindy

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1 reviews

Review for Cure AHC- Alternating Hemiplegia of Childhood, Rolesville, NC, USA

Rating: 5 stars  

I had never heard of AHC until I was introduced to Matthew and his parents. His parents are truly amazing and so loving to try to offer their child a "normal" childhood. However Matthew is not a "normal" child, he is a child with a special need. There needs to be much more research done and it can be done through awareness and contributions and support - even what you would consider small will help so much.
AHC is a rare neurological disorder with attacks that cause mild weakness to complete paralysis. It is sometimes misdiagnosed as epilepsy, because of the similar symptoms. Since there is no diagnostic test for the disorder; it can continue to go misdiagnosed for up to 2 years. Because of this, it is possible that it is not as rare as we think. The cause is unknown and so is the cure. Matthew and others deserve the opportunity to do things that others take for granted.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

A lot

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer