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Steven T

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4 reviews

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

After 10 years dealing with the pharmaceutical merry go round , nothing of which worked ,my wife read an article of a group going to D.C. For headache on the hill. I was in high cycle at the time , 12-18 hits a day and knew nothing about 02.
I immediately refused , but of course she signed us up. On the 5 hr trip to D.C. , anxiety was high , I was terrified to discuss my condition with strangers.
As we walked to the hotel entrance a group of 8-10 people were outside. I walked over and was greeted with handshakes and hugs , WTF , these people don't even know us .
Little did I know then that the first people I met are the pillars of the cluster headache community , Bob Wold , Cindy Reynolds , Lee Markins and Bill Mingus .
That decision by my wife made saved my life ! After 34 years she is my rock and I love her dearly !
Clusterbusters saved my life , and is continuing to save lives and research treatments for this horrific condition.

Role:  Volunteer
 

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

Saving lives every day !
The only cluster headache non profit raising awareness and helping people deal with this horrific condition .
Research
Advocacy
Awareness
Support

Role:  Volunteer
 

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

This is the only cluster headache organization that is literally saving lives , support , advocacy , research and working with big pharma on treatments.
The conference , held yearly , is the most important treatment any cluster sufferer can give themselves, the love and support can't be found anywhere on earth , these people get it , your not alone , and from the first hug , your family ..
Love this organization , they saved my life when I had enough and wanted to quit .. They helped me get my life back ........

Role:  Volunteer
 

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

Meeting this group of people truly changed my life..the love and support is truly amazing..the wealth of knowledge , from personal experiences to highly qualified neurologists ,give cluster headache patients options on how to cope with this debilating disease , for which there is no cure. Getting the word out on CH , people from all over the United States travel to DC to ask our representatives for help in finding cures for all headache disorders..

If I had to make changes to this organization, I would...

Find a way to secure the finances for advocacy and research for medications

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer