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Cindy95

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2 reviews

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

This organization pioneered Cluster Headache patient representation! Thank you Clusterbusters.

There are so many areas of coverage, including lobbying for research dollars in DC, patient to patient support forums, grant giving, hosting incredible, annual conferences (which just keep getting better & better), partnering with volunteers staffing the call rooms of suicide prevention hotlines (saving lives!) and much, much more. This organization represents the cluster headache patient community with such professionalism and care, it's been life altering for thousands of families.

If I had to make changes to this organization, I would...

Find a way to increase their funding, media attention and lobbying efforts.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2016

Role:  Volunteer
 

Review for Clusterbusters Inc, Richmond , VA, USA

Rating: 5 stars  

Clusterbusters nonprofit has a simple yet heroic mission: Amplify the historically muffled voice of cluster headache patients worldwide. Founded in 2002, Clusterbusters reached out to the medical community, researchers and whomever would listen! They now take teams (for 2 yrs and counting) to Congress! Amazing what this nonprofit has done for me and my family. Chronic cluster headaches nearly destroyed my life. I now have it back because of this wonderful organization. Below, is the statement on their website that I love the most......the pain of cluster headache is repudiated to be the worst pain known to mankind.

Through research, education and advocacy we hope to dramatically reduce the nearly 4 year time span in getting a proper diagnosis to get people on an effective treatment plan as soon as possible.

If I had to make changes to this organization, I would...

Provide them with an unlimited bank account to secure the desperately needed funding for research! I'd build them a neurological based science laboratory and staff it with the greatest medical minds in the world. And finally, I would give Daniel Radcliffe (cluster patient and actor of Harry Potter films) an honorary membership.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer