My Nonprofit Reviews

Kristy R. - charity reviews, charity ratings, best charities, best nonprofits, search nonprofits

Kristy R.

245 profile views
2 reviews

Review for Trisomy 18 Foundation, Flushing, MI, USA

Rating: 5 stars   Featured Review

Paige Elizabeth came into our world on June 11, 2013. There was no sign that anything was wrong until she was born. The next day, we found out she had Trisomy 18. We had no clue what that was, but immediately started researching. That's when we found the Trisomy 18 Foundation. Paige passed away on June 26, 2013, but I continued to learn. My family and I couldn't have made it through the absolute worst time of our lives without this foundation. They never hesitated to help with anything I needed - whether it was clarification, questions, or just finding someone to talk to. They sent us an ornament and gave families a place to share their stories.
I've learned so much and even created my own organization to raise funds for the Trisomy 18 Foundation. It's been my mission to bring awareness and raise funds so that maybe one day, a family doesn't have to go through the same devastation. The only way that can happen is awareness, donors and lots of support.
Also, the fact that it's been 7 years since Paige's passing and one of the volunteers knew exactly who my daughter was without me saying shows how much they truly care.
If any organization deserves this, it's them.

Role:  Client Served
 

Review for Trisomy 18 Foundation, Flushing, MI, USA

Rating: 5 stars  

I am the mother of a baby girl who was diagnosed with Trisomy 18. I had Paige Elizabeth Russell on June 11, 2013 via C-section and two days later found out she had been diagnosed with Trisomy 18. We took her off her ventilator on June 26, 2013 and lost her. The people with the Trisomy 18 Foundation have been amazing!! The little things they do, even just talking to you, helps me a lot. I've been dealing with Kristine Shaughnessy and I couldn't have asked for a better person to talk to. I highly recommend this foundation to anyone.

If I had to make changes to this organization, I would...

Not a thing!

Will you volunteer or donate to this organization?

Definitely

How much of an impact do you think this organization has?

Life-changing

When was your last experience with this nonprofit?

2013

Role:  General Member of the Public