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Review for Alternating Hemiplegia of Childhood Foundation Inc, Southfield, MI, USA

Rating: 5 stars  

I am the current president of the AHCF and I have been involved for over 20 years. My daughter was diagnosed in 1991 at 10 months before there was a foundation. It was another year before I spoke to a parent who understood. The foundation provides a wealth of knowledge through it’s website, literature and conferences. The foundation supports families worldwide, assists in connecting families with other families and physicians in their area, raises awareness, and raises funds for research. I will continue to work with AHCF until there is a treatment and ultimately a cure for AHC.

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Did the organization use your time wisely?

Very Well

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Role:  Volunteer