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Review for Children's Cardiomyopathy Foundation, Inc., Tenafly, NJ, USA

Rating: 5 stars  

I am a pediatric cardiac nurse. My primary role has been to coordinate the care of children affected by cardiomyopathy. CCF is a lifeline for parents and medical providers. Once a child is diagnosed with this rare condition I immediately link them with CCF because I know they will find an abundance of resources to help them learn about the disease and obtain support from other families affected by it. They are truly one unified source of accurate information about the disease, current trends in treatment and ongoing research.

CCF is committed to raising awareness, education and furthering research in the field and its impressive to see how much they've achieved at such a rapid pace. CCF's tireless effort and dedication to the pediatric cardiomyopathy community is truly admirable and commendable.

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Role:  Professional with expertise in this field