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Review for The Myositis Association, Alexandria, VA, USA

Rating: 5 stars  

My wife suffers from Inclusion Body Myositis (IBM). Through membership in TMA and in our local support group we have learned so much about this rare disease that we had never heard of prior to her diagnosis. As a volunteer member of the TMA board of directors I am aware of how the scarce resources of the organization are used and, in my opinion, the organization is very well run. The annual patient conference is a wealth of information and support for myositis patients and caregivers. The quarterly newsletters and random e-mails are full of useful information directed at this rare disease.

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Role:  Board Member