My Nonprofit Reviews

The TS Alliance has been so helpful to many parents of children and adults diagnosed with Tuberous Sclerosis Complex! We have been members of this organization for about 39 years after our son was diagnosed and we learned of the original National Tuberous Sclerosis Association. The support from their organization - through staff and hundreds of volunteers - has been personal and incredible. Everyone is working for a cure, but also for research for better medicines to help with the various symptoms.

I have been involved with this organization for the past 35 years after my son was diagnosed with Tuberous Sclerosis Complex. I have seen it evolve over the years from a "parent support" group to an organization that is committed to helping TSC patients and their families and to finding a cure for this difficult disease. They are a great organization! Their President and her staff are all great workers who put in 100+% to helping our cause!

The TS Alliance is a great organization! I am the parent of a 35-year-old son with TSC and have been involved with this organization for 33 years. For the past few years, I have been a volunteer in the National Office and have witnessed the expertise of the staff, as well as their integrity in helping support the members of the TSC community. They give support to newly diagnosed individuals, as well as others who are going through the various stages of the disease. They encourage community involvement by having many types of activities and different fundraising events to help raise awareness and funds for research.

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TSAlliance has been a great organization! I've actually been involved as a parent since 1979 when it was the National Tuberous Sclerosis Association and have benefitted from the support of the group in my various hometowns in California, Colorado and Virginia. They are a great group of hardworking staff, as well as a huge group of volunteers, who are committed to finding a cure for TSC. They are very involved with the social media network and reaching out to the community in every way they can, as well as trying all different ways to raise awareness about the disease and fundraise for research.

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