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lynn_dembski

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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

I was diagnosed with ET during my twenties - during my college years. At first, I thought the shaking was just from stress, but I noticed that it got worse with physical activity. My doctor told me that any type of stress on the body - emotional or physical, will increase ET symptoms.

Later, my mother was also diagnosed with ET. My doctor told me that ET symptoms generally get worse with age - and I can see that clearly in my 75 year old mother. Her head and voice shake significantly, and the ET clearly interferes with much of her daily life.

Right now, my ET mostly interferes with being able to write well and to eat or drink liquids. In my job as a school counselor, people often ask me if I am nervous - or if I am OK. I worry that they think I have an alcohol problem.

I am so glad that the International Essential Tremor Foundation is working to encourage and fund research for ET. I know that my children have a significant risk of developing ET, and I watch for symptoms with a sense of dread. I hope that they will not have to face the same struggles that I see my mother facing.

If I had to make changes to this organization, I would...

Provide additional funding for research efforts.

How would you describe the help you got from this organization?

Some

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served