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KRuss

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7 reviews

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

Well, now it has been 29 years that I have volunteered with USACFA and CF Roundtable. I feel that every one of my volunteer moments has been well spent. Since there are no paid employees, all the work is done by volunteers who have CF.
I learn something new about my disease every day because of the articles that our readers submit. When we started this organization in 1990, we knew it could take 20 years to get established and to accomplish our goals...and it has. We now are able to give scholarships to deserving young people who have CF for their vocational or college educations. The newsletter has grown from a dozen pages at the beginning, to 60 pages that are chock full of good info.
I will continue to volunteer here as long as I am able.

Role:  Volunteer
 

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

It has been my pleasure to volunteer with USACFA and CF Roundtable for 28 years. This group puts every cent that it receives into production of the only newsletter that is just for adults who have CF in the U.S.A. and into sharing information and resources with those adults. There are no paid employees of the organization. One hundred percent of your donation goes to the stated goals of the organization. I have CF and I find the newsletter invaluable.

Role:  Volunteer
 

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

As one of the older persons who have CF, I am 70, I find that CF Roundtable keeps me connected with others who live with CF on a day-to-day basis. I always learn from each issue.
I have been a volunteer for USACFA, the publishers of CF Roundtable, for almost 25 years. I know that it has been time well spent. I recommend reading this newsletter to all who have CF or who care for anyone who has CF.
And best of all, none of the Directors, officers or columnists are paid. All are volunteers.

Role:  Volunteer
 

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

For 24 years CF Roundtable has been providing a forum for adults who have CF, their families, friends and caregivers to share information and the latest news in CF research. I have been associated with this group (USACFA) from the beginning. I feel that my 24+ years of service have been a great investment. I have met many wonderful people through this newsletter and I cherish those friendships. And, yes, I have CF.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer
 

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

CF Roundtable is the newsletter for adults who have CF. It offers a way for adults who have CF to be connected with each other, with no concerns about cross-infection issues. It allows me to keep in touch with friends all over this country and others.
I have been a volunteer for USACFA for 24 years and feel that it has been time well-spent. All of the money that is donated to USACFA goes to publish the newsletter. There are no paid employees.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Volunteer
 

Review for USACFA, publishers of CF Roundtable, Gresham, OR, USA

Rating: 5 stars  

I have volunteered for CF Roundtable for more than 22 years. I have found it to be rewarding work. I know that we have been able to reach many people who would have no contact with others who have CF, if it weren't for CF Roundtable. Most articles are written by people who have CF and it gives them the opportunity to communicate with others who have CF. Many physicians and caregivers read it too. It is the only newsletter especially for adults who have CF in the USA. By the way, I have CF and I am 69 years old.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Volunteer
 

Review for Cystic Fibrosis Research Inc, Palo Alto, CA, USA

Rating: 5 stars  

CFRI has a wonderful history of helping people who have CF, their families and their caregivers. Their educational conferences are outstanding in their content and participation. As one of the older people who has CF, I really appreciate all they have done and are doing for those who are touched bu CF.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served