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judithkp

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1 reviews

Review for International Essential Tremor Foundation, Overland Park, KS, USA

Rating: 5 stars  

I had finally got my diagnosis after asking what was wrong with me for years. The MD's would just look at me when I told them my symptoms. Finally my MD retired and sold his practice to a large medical center. When I saw my PCP for the 1st time, I ask him, that since this hospital is suppose to know everything, I want to know what is wrong with me. (I was an RN and had worked rehab and never heard of it). The MD send me to a Neurologist and in 5 minutes I knew what was wrong. Then going on line I saw this foundation and joined. I attended a yearly information session @ Myrtle Beach, NC and was surprised at the no of patients were there. The next year, they had two sessions in my area of Winston-Salem & Greensboro, NC. My neurologist spoke at this meeting. I would like to get a support group started in the area, but right now they have in it with movement disorders, mainly Parkinson Disease. There was a large group of both of the sessions locally, so I know we could get a group going. I am willing to help, but right now the person at the hospital left and we are waiting on a replacement. There has been so much information that IETF has provided. I did a case study as an RN at my previous job before I retired. Thanks, IETF for your good work. My main problem is I can't take some of the meds and there are good references on the web site.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

When was your last experience with this nonprofit?

2013

Role:  Client Served