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Review for Global Hydranencephaly Foundation, Seabeck, WA, USA

Rating: 5 stars  

I am so proud to be a volunteer for Global Hydranencephaly Foundation! This foundation is near and dear to my heart as the adoptive mother of two girls with hydranencephaly. When my oldest daughter was born 12 years ago, there was very little accurate information on the internet regarding this condition and only a small support group of mother's with children who had hydranencephaly. As this new non-profit was formed, and a new facebook support group was formed, I have watched it grow and reach out to numerous families across the globe. Growing from 50 families to over 315 families in two years is a testament to the usefulness, accuracy and educational efforts of the GHF. And the support group affiliated with the foundation is the largest, best and most supportive that I have ever had the pleasure of being a member of! Thank you GHF and families for helping me daily in my journey with my two hydranencephaly miracle girls!

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Very Well

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Role:  Volunteer