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1 reviews

Review for Cornelia de Lange Syndrome Foundation, Inc., Avon, CT, USA

Rating: 5 stars  

Thank you so very much for all that you have done to help me get the word out about CdLS. I have never heard of it until my niece Haven Ray was born with it 5 years ago. And now I'm trying to get as many people aware of it as I can. I also do lots of fundraisers to raise money for the foundation, every little bit helps. Im so glad that the foundation was here to help my niece and her family during all of her surgeries and everything she has gone through. They really provide the families with so much information. Thanks again. Denise Ray*

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Role:  Volunteer