My Nonprofit Reviews
Review for Muscular Dystrophy Association, Tucson, AZ, USA
I was a little disheartened to see some of the negative reviews about the MDA but knowing how big this charity is and how many people it services I understand that not everyone will have the same experience. I personally have had a great experience with the MDA. I was diagnosed with Charcot Marie Tooth disease in 2003 when I was 16 at an MDA clinic in Chicago. But I really got involved with them in 2010 when my then 3 year old son was diagnosed with CMT also. That experience of watching my son struggle to walk and to reach is milestones was the hardest thing I've ever had to go through, and if it weren't for the MDA being there pretty much every step of the way I don't know how I would have gotten through it. I only have experience with local and regional employees of the MDA so I can't comment on anyone else at the organization, but the people I have met have all been caring, compassionate, and helpful. I have done many fundraising events with them, gone to parties, and my son goes to camp every year. I have also tried being involved in another charity for the disease I have and did not have a good experience, they are no where near the MDA. I think some people got upset when some services got cut a few years ago, while I understand the frustration I don't understand the hostility. The MDA still provides so many people with so many services and opportunities to see people turn their back on them in an instant makes me sad. Where would any of us with a neuromuscular disease covered by the MDA be without them? What other charity would be helping you out as much as this one?
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