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Adrianne C.

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1 reviews

Review for National Tuberous Sclerosis Association Inc, Silver Spring, MD, USA

Rating: 5 stars  

I was struck to read the messages from the early years who are still committed to the larger community of families with tuberous sclerosis complex Over the past forty years his organization has demonstrated an unrelenting commitment to change the course of the hardships faced by us all. I will always be grateful to each and every family member, volunteer, friend, staff , physician, researcher and the community. Yes, I recall realizing when my daughter was diagnosed and I was faced with all the unknowns of our future, that I would need a community to help her and all of the families.

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Did the organization use your time wisely?

Very Well

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Role:  Volunteer