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Susie J.

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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

This has been a really useful portal for information and support through to HLRCC, a rare genetic condition. Without the VHL Family Alliance I don't think our tiny group of sufferers would ever have been able to come together and share the life-saving information for patients, family and professionals. It has provided sufferers with a platform, a voice, information, comfort, support.

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Quite well

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Role:  Client Served