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1 reviews

Review for VHL Alliance, Boston, MA, USA

Rating: 5 stars  

I lost my father to VHL 33 years ago. There was no information at that time and my family felt very much alone. When my brother first became sick, we turned to VHLFA. They were there to help us understand he some of what was happening, supporting us each step of the way. VHLFA was there to help educate and support us through it all. They provide education to families as well as doctors that aren't familiar with this disease. As I now face the disease myself, I feel hopeful with all of the progress that is being made.

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How do you feel you were treated by this organization?

Very Well

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Role:  Client Served