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Juanita P.

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1 reviews

Review for Cure JM Foundation, Encinitas, CA, USA

Rating: 5 stars  

Our daughter Casey Nicole was diagnosed with Polymyositis, November 2007 during her freshman year in college, Casey was 17 at the time. Casey had been to numerous doctors and had gone through numerous diagnoses before she had received a proper diagnoses. Because of the LACK OF knowledge of this rare auto immune disease, Casey's treatments came too late. We, Casey, lost her battle with JPM, JDM only after 17 months of fighting. Casey was 19. It was a few months after this, that I came in contact with Cure JM via TMA message board. Thanks Rhonda, Shari, & HarrietB!! Not only does this wonderful group of parents support each other they all truly care for each other, MOST OF ALL there is a genuine love for each of these kids! Including for our Casey Nicole, I can't express enough what each of them have done for me and for our continuing to fight this disease, In Casey's memory. To help find better treatments, education for families and physicians, awareness for the public, and ultimately to one day fine a cure. I will always be here to continue this fight and working with Cure JM.

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Role:  Volunteer & fundraising.