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Tanja G.

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1 reviews

Review for Foundation for Angelman Syndrome Therapeutics, Downers Grove, IL, USA

Rating: 5 stars  

The entire goal of this charity is to cure Angelman Syndrome. The board is made up of parents, caregivers, and friends of children and adults with Angelman Syndrome, and they serve on this board voluntarily and for no compensation. I have seen firsthand that this is a time-consuming effort and many of the board members do this in addition to their regular jobs. They ask nothing in return but for us to raise awareness and funds to further AS research. When my daughter was diagnosed with AS ten years ago, we were told that there was no cure and that she would be dependent on others for all of her needs for the rest of her life. Because of FAST, this has changed. The cure for Angelman Syndrome has now become a reality. Right now, a clinical trial is being conducted to test a treatment for AS. Our daughter is part of this clinical trial, which is something that I could have only imagined ten years ago. I am so grateful for the dedication that FAST has to our children and to the entire Angelman Syndrome community. I have nothing but the utmost respect for FAST as an organization and will support them in any way that I can because this organization believes in the miracle of a cure for our daughter.

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Role:  Donor