My Nonprofit Reviews
Review for Brendan B. McGinnis Congenital CMV Foundation, Wheat Ridge, CO, USA
Our daughter was born with cCMV 15 months ago. We had never heard of CMV before our lives were changed by it. We spent several months feeling alone. We tried to talk to doctors and therapists to try and help us connect with other families with children with cCMV without any success. Finally, my wife connected to Tracy with the Brendan B. McGinnis Congenital CMV Foundation and within hours was plugged in to a network of other families who understand what we are going through and have been able to guide us through some of the challenges of raising a child affected by cCMV. Thank you for what you do!
I've personally experienced the results of this organization in...
Online support groups, annual meet-up to get more information and build connections with other families.
If I had to make changes to this organization, I would...
Easier to find and a knowledge-base of frequently asked questions.