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Review for Sickle Cell Awareness Foundation Corp Int, Jamaica, NY, USA

Rating: 5 stars  

sickle cell disease is the most common inherited blood disorder in the united states, affecting 70,000 to 80,000 Americans this disease is estimated to occur in 1 in 5,00 African American and 1 in 1,000 to 1,400 Hispanic American. The SCAF have found that there are great ignorance concerning sickle cell disease in general, and treatment amongst the general public and Medical providers. Currently there is no effective cure available for sickle cell disease or trait in the event of a crisis. We focus on distributing awareness and knowledge of sickle cell and the importance of early intervention, prevention efforts, Childcare, Pain management, and urgent treatment.

I've personally experienced the results of this organization in...

I have personally attended a lunch and learn program at the Hospital where they explained the different types of sickle cell and treatment options, and the genetic aspect of this disease the objective of the SCAF Int is to faciliate sickle cell awareness through education by visiting hospitals, Nursing Homes, Community Multi Service Center which increase the general community's awareness of this condition.

If I had to make changes to this organization, I would...

The SCAF Corp Int,should be given the opportunity to improve the quality of life, the unpredictable nature of this illness, with recurrent episodes of pain, and Hospitalization can have substantial impact on the individuals quality of life affecting school, work schedule, and self esteem, appropiate diagnosis,counseling and aducation are essential for individual affected and their family as well as proper and timely response for sickle cell patients at hospitals.

Role:  Board Member & I went to Trinidad to educate Doctors and Health providers on sickle cell and its effects on families.