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Frank V.

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1 reviews

Review for International Myeloma Foundation, North Hollywood, CA, USA

Rating: 4 stars  

I was diagnosed almost 9 years ago, and over 5 years ago started a Multiple Myeloma Support group. During that time the IMF has been a wonderful source of information about MM and treatments/drugs and clinical trials available.

This has been very valuable in understanding my own treatment options and providing information and contacts to others with Multiple Myeloma.

I'm happy to see local events Like the Patient and Family Seminar being held in Minnesota, and I'd love to see an opportunity for that type of information event in Rochester MN.

The ability to contact someone personally is extreamly valuable to those that have been newly diagnosed or are considering new treatment, Thank You for providing that.

I've personally experienced the results of this organization in...

Information / Brochures on treatments and Desease overview Seminars that explain many related topics to dealing with MM and quality of life .

If I had to make changes to this organization, I would...

Provide more local connections to support groups Provide local seminars to areas with Cancer Centers and a high number of MM patients

How would you describe the help you got from this organization?

A lot

How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Quite well

How did you find this group?

via others involved in Multiple Myeloma and via web search

What, if any, change in your life has this group encouraged?

Help in supporting and reaching out to others!!

When was your last experience with this nonprofit?


Role:  Client Served & Started and Host a Mulitple Myeloma Support group for patients, caregivers and family.