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Jennifer E.

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1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

The NOMID Alliance has been such a valuable asset to those of us who suffer from these syndromes and also to the families and friends of those affected. The NOMID Alliance has brought information to many all over the world and educated patients, families, and doctors. As a patient myself and my daughter also, it has been wonderful to direct various doctors of differing specialties to this website for further information. I cannot even describe how valuable it is to have a website like this for doctors to go to. These are fairly rare syndromes and even the doctors are grateful for the opportunity to have this wealth of information in one location. Great tool for patients, caregivers, families, and doctors!

I've personally experienced the results of this organization in...

The NOMID Alliance is what I like to think of as a valuable LINK all around the world. When you become aware of this valuable tool it LINKS you with other patients, families, doctors, etc...Then as the CHAIN gets longer these families and patients feel connected as they are trying to battle some difficult situations.

If I had to make changes to this organization, I would...

We are continually trying to better this organization and welcome any suggestions and concerns at any time. We all want to work together to make this organization useful and helpful to everyone.

Role:  Board Member & My husband and I hosted an Art Show that benefited the NOMID Alliance. The artwork was submitted by NOMID patients and their friends and family. .