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Louise K.

529 profile views
1 reviews

Review for Autoinflammatory Alliance, San Francisco, CA, USA

Rating: 5 stars  

Invaluable resource for families with Nomid Syndrome and other CAPS disorders. Has been extremely helpful in providing support and information, especially with regard to treatment options for these rare disorders. The organiser of the site is excellent.
My son is leading a normal life with the help of the resources we have accessed through this site, and it has made a difficult journey so much easier for us.

I've personally experienced the results of this organization in...

My son has been able to receive the best treatment for his rare condition. His doctors have been able to access current information. I have been ableto make links with families all round the world dealing with the same condition.

If I had to make changes to this organization, I would...

None, The organiser achieves amazing results with very limited resources.

Role:  Client Served & I received infromation and support in dealing with my son's condition.