My Nonprofit Reviews
Review for Parents of Kids With Infectious Diseases, PKIDS, Vancouver, WA, USA
When my daughter was diagnosed with an infectious disease in the weeks after joining our family through adoption in 2002, I was full of fear for her and for our family. My local pediatrician had little experience with the virus and I didn't know where to turn except the Internet. Luckily, I soon discovered PKIDS.
The information gleaned from the PKIDS site gave me nearly instant peace of mind as I was reassured that my daughter's diagnosis was not a death sentence and that, with a few simple precautions, other family members would be absolutely safe. Reading others' stories, ranging from issues around disclosure to how to deal with blood spills, were incredibly instructive and greatly impact the way our family functions act to this day.
I've personally experienced the results of this organization in...
In the eight years since our daughter (who has an infectious disease) joined the family, I have turned to PKIDS again and again for information. Through the site, I have found excellent specialists in our region, had specific questions answered by international experts, and been able to fully prepare for our annual medical visit with just the right questions. I can go on and on. PKIDS is my "go to" site for nearly every aspect of coping with my daughter's condition.
If I had to make changes to this organization, I would...
My wish for PKIDS would be that it was better known, as a primary resourse for parents, among pediatricians and family doctors throughout the country. If they knew about this fantastic resource they would be able to give the web address to every family when they deliver bad news re: infectious disease diagnosis. As such, they would empower parents to better cope with their child's condition.
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What, if any, change in your life has this group encouraged?
So many changes...hard to know where to start. After reading PKIDS info I: * changed the way I was handling disclosure of my daughter's condition (to schools, daycare, camps, etc.) * put together blood spill kits on every floor of my home * found a specialist in a big city four hours away instead of relying on my local pediatrician who had little experience with this disease * taught my daughter how to handle her own blood spills whenever possible
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