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Kathleen M.

247 profile views
1 reviews

Review for Arthrogryposis Multiplex Congenita Support, Inc., Salyersville, KY, USA

Rating: 5 stars  

As a 55 yr. old with AMC who had no contact with other AMC'ers until I was in my late 20's and only for one day. I was overjoyed to have discovered this ORG. It has enabled me to meet hundreds of AMC'ers virtually across the world. I'll be attending my first conference next month and will be meeting many more. The stories shared by these adults and parents of young children, and their kids, have been an incredible inspiration to me. They help me to see how far I have come in my journey with AMC and in turn enable me to light the way for them on the earliest steps on theirs. None of this would have been possible without this amazing ORG. I hope one day there will be no need for such an ORG. Until then, I hope it grows exponentially to envelope many many more in the support, knowledge and inspiration I have come to know and love through their heartfelt mission.

I've personally experienced the results of this organization in...

Learned more about my condition and come in contact with professionals, Drs and clinicians who have helped me become the best I can be.

If I had to make changes to this organization, I would...

Work with the corporate sector by creating a speakers bureau to help employers better understand that attitude is everything, and how building on our strengths empowers all of us to reach our full potential, not only as employees, but as members of society.

How would you describe the help you got from this organization?


How likely are you to recommend this organization to a friend?


How do you feel you were treated by this organization?

Very Well

How did you find this group?

Yahoo and Facebook

What, if any, change in your life has this group encouraged?

See above

When was your last experience with this nonprofit?


Role:  Client Served & Helped young mothers to have hope for their newly diagnosed children.