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Jay N Julie L.

142 profile views
2 reviews

Review for Cure JM Foundation, Encinitas, CA, USA

Rating: 5 stars  

When our daughter was first diagnosed with Juvenile Dermatomyositis her doctor told us about Cure JM. Since we have come in contact with some of the most amazing people and they have all been such a wonderful support system to our daughter and our family. This last year we held a fundraiser to help Cure JM raise money. We want a Cure for our daughter and for all the other kids suffering with this rare disease. I feel that Cure JM is such a wonderful and supportive foundation. They keep us up to date on all new informations about medicines and research and even fundraising events. We are so thankful for this group and are so appreciative of the support we get from them and the people they have put us in touch with.

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Role:  General Member of the Public

Review for Cure JM Foundation, Encinitas, CA, USA

Rating: 5 stars  

Our daughter was diagnosed when she was 3 years old. She is now 9. After months of being so overwhelmed we came across the Cure JM foundation. We were sent a welcome pack immediately with some bracelets and some other family and patient support information. Our daughter loved a part on their website with pictures of other children also with the disease. It has really helped her feel like she isn't the only one dealing with Dermatomyositis. We are so thankful for Cure JM. Jay and Julie

I've personally experienced the results of this organization in...

receiving information when we were first diagnosed and not feeling so alone.

If I had to make changes to this organization, I would...

I think that they are doing a great job in spreading the word about this very rare disease.

Role:  General Member of the Public & I am a stay home mom.