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dougweb

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1 reviews

Review for American Dystonia Society, Inc., Princeton Juntion, NJ, USA

Rating: 5 stars  

When I first came down with dystonia in 2009, the ADS was there for me. My family didn't understand the disease and the doctors were confused and prescribing incorrect meds making things worse. ADS never asked for money, didn't pitch, or prod for anything. The members and staff just wanted to help me learn about dystonia. This organization is the guardian angel's network for dystonians like myself.

I've personally experienced the results of this organization in...

evaluating my own medical treatments. Through their on-line chats and telephone chats I learned what to expect when doctors would not take the time to tell me. ADS doesn't provide intervention, they help educate you so that you can make good decisions and find good medical care.

If I had to make changes to this organization, I would...

ask every doctor with a dystonia patient to refer that patient to ADS.

How would you describe the help you got from this organization?

Life-changing

How likely are you to recommend this organization to a friend?

Definitely

How do you feel you were treated by this organization?

Very Well

How did you find this group?

On-line research.

What, if any, change in your life has this group encouraged?

Fully understanding the disorder and helping others to set their expectations.

When was your last experience with this nonprofit?

2011

Role:  Client Served & I received the benefit of their on-line chats and telephone chats and met other dystonians.