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Wife's name is Pandora

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1 reviews

Review for The Oral Cancer Foundation, Newport Beach, CA, USA

Rating: 5 stars  

I am a caregiver. My wife Donna is a two time oral cancer survivor. She first had cancer in 2004 and then again in 2007. This has been a very rough time for us, but I know she spends alot of time on the Oral Cancer board and I know there are times when she has been helped alot by other people who have the same disease. So far I have not needed to go there to find out what other helpers are doing because our medical system provides alot of support.

I've personally experienced the results of this organization in...

My wife gets great support from the foundation and that has helped how she deals with the family.

If I had to make changes to this organization, I would...

Tongue cancer isn't very well known. My coworders know nothing about it. I think if I ran this organization I would let more people know about the disease and its causes. Hopefully by doing that, fewer people would get it.

What I've enjoyed the most about my experience with this nonprofit is...

I have liked that my wife had someone to talk to and that we could for brief times return to a normal existence.

The kinds of staff and volunteers that I met were...

I haven't met any.

If this organization had 10 million bucks, it could...

Better serve those with tongue cancer and be less reliant on those with the disease to fund the foundation.

Ways to make it better...

I think if I had used the boards myself to help to deal with how I felt too, it would have been good. If the cancer comes back, I will do that.

In my opinion, the biggest challenges facing this organization are...

This cancer isn't one of the big name cancers, it doesn't seem to get the attention it should. Getting the funding to spread the word is this organizations biggest challenge. I know my wife has made donations and bought things to help with fundraising.

One thing I'd also say is that...

My wife becomes very close to the other members. They refer to each other as their family members. This is very valuable as I know she often feels very alone with this cancer.

When was your last experience with this nonprofit?


Role:  General Member of the Public & I heped my wife with her surgeries and treatments for tongue cancer.