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Barby I.

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9 reviews

Review for International Pain Foundation, San Tan Valley, AZ, USA

Rating: 5 stars  

The reason I love International Pain Foundation (iPain) so much is because it works outside the box of the traditional projects to raise awareness and education for pain patients, caregivers, providers, and the public. All of the staff is volunteer from the board of directors to the event volunteers. Those who become delegates get to add their creative thoughts and actions to make a difference in the lives of those who live in pain. Most of the volunteers are pain patients themselves so that is very beneficial. I am so glad to have the amazing song Hope is True and the music video to raise hope, attention and awareness for those in pain. I look forward to the next adventure with International Pain Foundation! I also am very proud of the addition of iPain Living Magazine in 2016 as well as the Music Moves Awareness project, iPain Featurettes, and webinar series.

Role:  Board Member
 

Review for International Pain Foundation, San Tan Valley, AZ, USA

Rating: 5 stars  

The International Pain Foundation (iPain) is your Power of Pain headquarters. We have grown off of the Power of Pain Foundation which was created in 2006. Our former tax ID is 65-1298571. As President of iPain I am excited to continue the mission of the foundation to help chronic pain patients with education, awareness, social events and access to care issues. We have so many projects that have made a difference under our belt and so many great ideas and new and continuing projects to come. We look forward to your involvement as we take iPain around the world to make a difference in the lives of the over 700 million living with chronic pain diseases.

Role:  Board Member
 

Review for Power of Pain Foundation, Chester, VA, USA

Rating: 5 stars  

Over the past few years the Power of Pain Foundation has grown significantly in the area of awareness of access to care for pain patients. We are in the process of creating a worldwide presents to make a difference. I encourage the public and people with invisible disabilities involving chronic pain to take some time to invest in the POPF Delegate program and other tools and resources offered by the POPF.

Role:  Board Member
 

Review for Neuropathy Action Foundation, Santa Ana, CA, USA

Rating: 5 stars  

The Neuropathy Action Foundation has assisted in raising awareness, hosting patient education events and supported legislation for proper access to care issues over the years. I love working with Dominick and the NAF on a professional and personal level. Being able to be apart of their amazing Neuropathy Action Day event each June has been a blessings and we look forward to attending every year. Their information and PSA's are top notch. Please keep up the amazing work you do for so many!

If I had to make changes to this organization, I would...

Nothing

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Professional with expertise in this field
 

Review for Power of Pain Foundation, Chester, VA, USA

Rating: 5 stars  

The POPF has reached thousands of patients with chronic pain conditions/diseases that we have been able to help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program, International RSD Awareness Quilt Project, Sleep Easy Program, State Ambassador program, disease specific information and so much more! I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. In January 2013 I was named to the chairman position of the Power of Pain Foundation for 13-14. Being halfway through my term as Chairman I am excited that we are continuing to grow and help so many people. Thanks to so many of you for all of the support and dedication to the pain community.

If I had to make changes to this organization, I would...

I would increase the income from donations, grants and fundraising so that we could assist even more people!

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2014

Role:  Board Member
 

Review for Neuropathy Action Foundation, Santa Ana, CA, USA

Rating: 5 stars  

I have seen the Neuropathy Action Foundation host educational conferences. They have created amazing resources for neuropathy patients over the years.They are doing great creative projects that put a huge spotlight on neuropathy and I love to attend their yearly conference to be educated on the latest information in the neuropathy world.

If I had to make changes to this organization, I would...

Nothing, they are great!

How does this organization compare with others in the same sector?

Very Well

How much of an impact do you think this organization has?

Life-changing

Will you recommend this organization to others?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Professional with expertise in this field
 

Review for Power of Pain Foundation, Chester, VA, USA

Rating: 5 stars  

I have been apart of the Power of Pain Foundation since its inception in November 2006. It has been a great honor and pleasure to work with so many great volunteers, patients, caregivers, and providers over the years. I am so excited to now be the Chairman of the Power of Pain Foundation and look forward to being apart of it for many more to come. We have a reach of thousands of patients with all sorts of chronic pain conditions that we help with pain resources, social activities, and raising awareness through creative projects such as our NERVEmber program.

Will you volunteer or donate to this organization beyond what is required of board members?

Definitely

How much of an impact do you think this organization has?

Life-changing

Will you tell others about this organization?

Definitely

When was your last experience with this nonprofit?

2013

Role:  Board Member
 

Review for Power of Pain Foundation, Chester, VA, USA

Rating: 5 stars  

It has been a great pleasure working with the Power of Pain Foundation on so many projects and events to help the pain community. One of the things I love best is that the POPF works with so many patients with different types of Neuropathy conditions. Their resources are top notch and their mentoring program is great as well. People can get involved at many different levels with the POPF and I am glad to be a volunteer and donor for POPF!

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

When was your last experience with this nonprofit?

2012

Role:  Volunteer
 

Review for Power of Pain Foundation, Chester, VA, USA

Rating: 5 stars  

I have been working as a volunteer for the Power of Pain Foundation since 2007. I am involved with the awareness program, motivational and mentoring program and social outings programs. I have seen first hand how the POPF helps patients with financial and emotional supports, provides resources to the pain community and stays on top of cutting health information in the pain community. The patients, caregivers and healthcare providers involved in the POPF are great assets. The POPF has a unique approach to working with the pain community by giving views from all three perspectives. We work on improving quality of chronic illness care, direct supports, and public and professional awareness of the issues and challenges of living with chronic pain on a daily basis.

I've personally experienced the results of this organization in...

As a patient mentor I have personally experienced the good that comes from when a bad situation leads patients and their support systems into taking action and gaining the tools to become their own best advocate. I have been able to see how the patient grants help our grantees and their gratitude when someone shows them that there is help, hope and people do care. I help people turn their pain to power!

If I had to make changes to this organization, I would...

Increase awareness events and funding for patient grants. This can only be done thorugh donations and grant writing. I wish the POPF could help more people, because I know how much it has to offer the pain community on a grand scale.

Would you volunteer for this group again?

Definitely

For the time you spent, how much of an impact did you feel your work or activity had?

Life-changing

Did the organization use your time wisely?

Very Well

Would you recommend this group to a friend?

Definitely

What one change could this group make that would improve your volunteer experience?

Their events are very organized and professional. I would change their budget to a larger one so that more people could recieve the benefits of the POPF.

Did your volunteer experience have an effect on you? (teaching you a new skill, or introducing new friends, etc.)

I have meet so many wonderful patients, caregivers and healthcare professionals from around the country. I have learned how to create action oriented change to better the pain community. I have learned how much personal interaction can help pain patients.

How did this volunteer experience make you feel?

I am so happy to be able to volunteer for the POPF because it makes me feel that I am doing something. I have power to become my own best advocate and I can now teach others that they too can do this!

When was your last experience with this nonprofit?

2011

Role:  Volunteer & I help patients and caregivers find their way through the challenges of living with chronic pain daily.