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Lynn

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1 reviews

Review for Neuroendocrine Cancer Awareness Network Inc, Fort Mill, SC, USA

Rating: 5 stars  

Truly, I cannot say enough about the generosity, kindness, and helpfulness of this organization. When I was first diagnosed with this rare cancer, I called and spoke to Maryann Wahman for over an hour. She was, and has remained, an advocate for Carcinoid patients, while being a patient herself. She and her husband and family run the entire organization, and take calls, plan events, run a support group, and keep up to date on the latest information. They always have time to help somehow. They help with referrals to carcinoid specialists, have information on procedures and medications, and can get people in touch with each other to help. I cannot thank them enough.

I've personally experienced the results of this organization in...

the support groups they run, in finding the best care available, in networking with other carcinoid patients, in attending seminars where carcinoid specialists speak and give information, helping to raise money for carcinoid cancer research.

If I had to make changes to this organization, I would...

I think they are perfect.

Role:  Client Served & I attended seminars, took part in annual walkathon.