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Nonprofit Overview

Causes: Health, Specifically Named Diseases Research

Mission: The Williams Syndrome Changing Lives Foundation was formed to enhance the lives of children and adults living with a diagnosis of Williams syndrome by providing needed financial assistance with medical, educational, therapeutic, recreational needs and other developmental resources. In addition, the Williams Syndrome Changing Lives Foundation provides support for individuals, parents and families through outreach, and sponsored functions.

Target demographics: individuals with Williams syndrome

Direct beneficiaries per year: hundreds of families with resources and information regarding Williams syndrome

Geographic areas served: United States

Programs: Family Assistance Program assisting individuals with Williams syndrome with medical, developmental, educational, therapeutic and recreational resources.

Community Stories

9 Stories from Volunteers, Donors & Supporters

7 Tyler5

Client Served

Rating: 5

Williams Syndrome Changing Lives Foundation helped us in a time when we thought there was no help. They offer educational material and HOPE for parents who first find out they have a William's Syndrome Child. They send out newsletters keeping parents informed of current WS news and inspirational stories to keep our chins up. The CEO, Penny Perez, is nothing less than a Saint. She is not only the CEO she is a parent to a child with William's Syndrome. My wife regularly seeks advice from her from advocating for our children to other general parental concerns. The non-profit is well executed and managed and makes a real difference in people's lives. Thank you Penny and William's Syndrome Changing Lives Foundation for all that you have done to help our family and our son Ethan (16mo old).

2 Dawgs64

Professional with expertise in this field

Rating: 5

I am honored to work with Williams Syndrome Changing Lives Foundation. Their awareness efforts and community reach is frowing rapidly and very muxh needed.

Support services are outstanding and we look forward to our continued work with them.

Previous Stories
3

Professional with expertise in this field

Rating: 5

I have worked with Williams Syndrome Changing Lives Foundation on a couple of projects and have found them to be completely professional and with a very clear vision.

I am honored to assist them with their efforts and will continue to do so. We will continue to reach out to them for information about Williams syndrome and their resources.

3 Pamela89

Professional with expertise in this field

Rating: 5

Penny Perez and the Williams Syndrome Changing Lives Foundation does exactly what its name suggests! They actually use the funds they acquire to directly help people and families in need who are affected by Williams syndrome to help change their lives in a positive manner. In addition to raising awareness, the foundation runs support groups, sends children to camp, features newsletters, holds webinars with professionals who can provide guidance to families, and interacts directly with their members on a daily basis and much, much more. The non-profit organization is run professionally and transparently as well as with passion and love. Penny's inspiration for starting this foundation came from her own adorable son who was born with Williams syndrome. Faced with this, she soon recognized the need for additional support within the Williams syndrome community and founded the Williams Syndrome Changing Lives Foundation. The foundation has helped so many people in so many ways. If you are looking to donate to a worthy cause, please consider the Williams Syndrome Changing Lives Foundation.

2 Mario6

Professional with expertise in this field

Rating: 5

This organization has been on the forefront of getting information and services to parents with Williams Syndrome. I was contacted to provide a legal seminar regarding education for individuals with disabilities. I was very impressed.

Mario M. Blanch, Esq.

2

Professional with expertise in this field

Rating: 5

We are honored to be working with this wonderful foundation. As a foundation partner, we look for organizations with a similar mission and we believe that this Foundation far exceeds that. They have a commitment to the individuals they serve and are an invaluable asset to the Williams syndrome community.

2

Professional with expertise in this field

Rating: 5

Williams Syndrome Changing Lives Foundation continues to make an impact in the Williams Syndrome Community. They offer great support, resources and assistance. We would be lost without them!

2

Volunteer

Rating: 5

I am a volunteer and advisor for the Foundation and they are truly changing lives for families. They are dedicated and provide so many needed resources that are not otherwise available.

The also make sure that they have a variety of resources for parents and families.

Previous Stories
4

Professional with expertise in this field

Rating: 5

This organization has done so much for the Williams syndrome community. They know the needs and care about the families. Great Job!

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3

Professional with expertise in this field

Rating: 5

Williams Syndrome Changing Lives Foundation goes above and beyond to provide great information and resources. I have collaborated with them on a few projects and I appreciate how professional and personable they all are.

4

Professional with expertise in this field

Rating: 5

We have been working with Williams Syndrome Changing Lives Foundation to join forces in spreading awareness about Williams syndrome and other Rare Genetic Disorders. We have found them to be a group of dedicated individuals committed to their cause and purpose.