In August of 2004 our babies were diagnosed with TTTS. I searched the Internet for more information about the disease and happened upon the TTTS website. I contacted Mary and with in 2 days, a wonderful packet of information was shipped to me. A week after being diagnosed, I went into preterm labor at 22 weeks and we lost both of our girls. I contacted Mary again, and she sent out a bereavement packet with incredibly helpful information.
In August of 2017 I found out that we were once again having mono-di twins. I cried at the ultrasound fearing that this set would develop TTTS and succumb to the same fate. I called Mary and she spent 45 minutes on the phone providing as much information about preventing TTTS as she could. She also got me in touch with Dr. DeLia, who is an invaluable resource.
I felt so supported and cared for throughout my entire pregnancy. Mary would often message me to check up and see how things were going. On January 14, two healthy baby girls (Sierra and Charlotte) were born. Without Mary's support and guidance, I doubt the outcome would have been as successful as it was. The TTTS is an invaluable nonprofit that provides resources and support for those struggling to fight TTTS. I'm so grateful that she founded this wonderful organization!
The Twin to Twin Transfusion Syndrome Foundation and Mary Slaman were such an encouragement to us during our TTTS Journey. Our twins were diagnosed with Stage 3 TTTS at 15 1/2 weeks gestation. We had a laser surgery at 17 weeks. The foundation helped alleviate some of our financial burden during our 19 day stay away from home. Since our delivery, Mary has continued to offer support and encouragement to my family and many others. We are truly thankful for all that foundation does to support families going through this terrible disease.
Finding out that my sister was pregnant with identical twins was such an incredible feeling and then finding out about TTTS was frightening. We did not know what to expect. Our whole family was there to support her but without knowing much about TTTS it was hard. Through this foundation, my sister had incredible resources and amazing people to support her, console her, and guide her through her pregnancy and surgery and up until today. It has been over 2 years since my niece was born and my sister still keeps in touch and has made lifelong friends. Thank you for being there for my sister, brother in law and niece when they needed you the most.
One of my closest friends has two happy and healthy TTTS survivors thanks to the help and support offered through this foundation! Such a rarely mentioned disease deserves all the awareness it can get and this foundation is on its way to achieving just that!
The TTTS foundation helped my wife and I get through our battle with TTTS. They provide support and advice to our family throughout the entire pregnancy. It would have been much harder to go through something like this without them being there.
I remember when we were first diagnosed with TTTS. It was a total shock. I immediately reached out to Mary at the foundation. She was an amazing support and i couldn't thank her enough. She gave me a sense of hope and comfort. She was also a shoulder to cry on. Along with that an amazing resource. I have met amazing people and owe alot to Mary and the foundation. I have made great friendships through this foundation and will be forever grateful
Mary is absolutely amazing in all that she does for TTTS awareness and in helping families during their most trying times. From encouraging words to bereavement services, she goes above and beyond for everyone who reaches out to the foundation. I honestly don't know how I would have made it through my TTTS pregnancy without this foundation's support and guidance.
Let me start by saying how grateful I'm with Mary and this wonderful organization. I started doing some research about twin to twin transfusion syndrome right after my OBGYN confirm the identical twin pregnancy. My Doctor of 6 years was not so pleased with the news, she said it was going to be a really bumpy pregnancy, that she did not expected me to do well, she mentioned the possible complications such as twin to twin transfussion syndrome. I decided to do some research on my own when I found the wonderful website that the foundation had created, later I decided to call Mary. At first, I was expecting to just leave a message and receive a call back days later; to my surprise Mary answered the phone right away, at the time I was very sad, I was crying. This was our first pregnancy and was confused and very sad for the babies. She was so wonderful and hopeful, she gave me encouragement, her calming voice was just what I needed to hear at that moment, she made me feel that there was hope for our babies. She has been there for us. She is available when we need her the most. Her website organization is full of important information. I just cant say enough about what a blessing she has been in my life and my families. I love her organization. I feel she really answered Gods calling when she decided to create this foundation. Unfortunately, our baby girls died, and we are devastated right now. Mary is been a wonderful support through all of our nightmare.
I completely recommend her organization, from the bottom of my heart. In this day and age is hard to find good, loving people. Sometimes its is amazing to come across someone that can be like family to a complete stranger. That is how Mary treats people. GOD BLESS YOU MARY! I will be creating a video shortly.